Navigating a New Neurological Diagnosis: Finding Balance and Support with Therapy and Resources
Receiving a neurological diagnosis can feel overwhelming, bringing a flood of emotions and uncertainties. At Fireweed Therapy LLC, we understand that this moment marks the beginning of a journey—one that you don’t have to navigate alone. Our mission is to support individuals and their families as they adjust to these changes, empowering them to live meaningful, independent lives.
Here are some insights and strategies to help you or a loved one adjust to a new neurological diagnosis.
1. Give Yourself Grace
Receiving a diagnosis like Parkinson’s disease, multiple sclerosis, or a stroke can trigger a range of emotions, including grief, fear, and even relief at having answers. Allow yourself to feel these emotions. It's normal to need time to process and adjust.
Remember: This journey isn’t about perfection—it’s about progress. Taking small steps, even on difficult days, is still moving forward.
2. Educate Yourself and Your Support System
Understanding your diagnosis is empowering. Learn about the condition, its progression, and available treatments. Knowledge helps reduce fear of the unknown and equips you to make informed decisions.
Encourage your family and caregivers to educate themselves, too. When everyone is on the same page, it fosters stronger support and communication.
3. Prioritize Functional Independence
At Fireweed Therapy, we focus on helping you maintain and maximize your independence. Occupational and physical therapy can be transformative in adapting to new challenges.
Occupational Therapy: Learn strategies to navigate daily activities, from dressing to cooking, while conserving energy and ensuring safety. Adaptive equipment and home modifications can make a world of difference.
Physical Therapy: Rebuild strength, improve balance, and manage symptoms like spasticity or coordination issues. These therapies are tailored to your unique goals and environment.
4. Build a Care Team You Trust
Your care team will be your partners in this journey. Surround yourself with medical professionals, therapists, and support networks who listen to your needs and respect your goals.
If you’re in the Anchorage area, our team at Fireweed Therapy offers in-home outpatient occupational and physical therapy to meet you where you are—both physically and emotionally.
5. Practice Self-Care and Mindfulness
Living with a neurological condition can be physically and emotionally taxing. Incorporate practices like mindfulness, meditation, or gentle yoga to reduce stress and improve mental well-being.
Self-care doesn’t have to be elaborate. Even small moments—enjoying a cup of tea, sitting outside, or listening to music—can offer comfort and grounding.
6. Connect with Others
You are not alone. Seek out support groups or communities where you can share experiences, challenges, and triumphs. Hearing from others who understand can provide perspective, encouragement, and practical tips.
7. Focus on What You Can Control
A new diagnosis can bring uncertainty, but focusing on what you can control helps foster resilience. Set realistic goals, celebrate small victories, and remember that progress looks different for everyone.
How We Can Help
At Fireweed Therapy LLC, we are committed to helping individuals with neurological conditions adapt to their new reality with compassion, dignity, and hope. Whether through personalized therapy sessions, home safety evaluations, or adaptive strategies, our goal is to help you thrive in your environment.
Reach Out Today
If you or a loved one is adjusting to a neurological diagnosis, we’re here to support you. To get started with Fireweed Therapy ask your doctor to fax a referral for outpatient OT and/or PT to 907-531-3246. We accept a wide range of insurance plans, including Medicare and VA benefits. Then contact us at (907) 312-5344 or info@fireweedtherapyak.com to set up an evaluation.
Together, we’ll create a plan that focuses on your strengths, builds on your goals, and helps you navigate this new chapter with confidence.
Find A Neurologist
In Anchorage, Alaska, there are several resources available to support individuals living with neurological conditions and their caregivers. These resources can provide medical care, emotional support, and opportunities for education, socialization, and rehabilitation.
1. Peak Neurology & Sleep Medicine
Peak Neurology specializes in diagnosing and treating neurological and sleep disorders like sleep apnea, insomnia, and narcolepsy. They focus on providing individualized, patient-centered care.
Address: 3831 Piper St Ste SLL020, Anchorage, AK 99508
Phone: (907) 331-3640
Website: peakneurology.com
2. Alaska Neurology Center LLC
Alaska Neurology Center LLC offers a full range of neurological services, including advanced imaging, sleep studies, and treatments for conditions like migraines, epilepsy, and multiple sclerosis.
Address: 1100 E Dimond Blvd, Anchorage, AK 99515
Phone: (907) 565-6000
Website: aknc.com
Other Support Groups for Navigating a New Neurological Diagnosis:
3. Brain Injury Support Groups in Alaska
Alaska Head Injury Support Group (Anchorage) - Meets twice a month at Access Alaska.
Brain Injury Support Group (Homer) - Meets weekly for individuals with brain injuries from various causes.
Kenai Peninsula Brain Injury Support Group - Monthly meetings with annual Brain Awareness Walk for prevention.
Traumatic Brain Injury Support Group (Wasilla) - Monthly meetings for those affected by traumatic brain injury.
For more details, check out Brain Injury Support Groups in Alaska.
4. American Parkinson's Disease Association (APDA)
The American Parkinson's Disease Association (APDA) is dedicated to supporting individuals impacted by Parkinson’s disease (PD) through education, advocacy, and research. They offer resources like support groups, educational materials, and events to improve the quality of life for people living with PD. APDA also funds critical research to help find a cure and better treatment options. For more information, visit their website: APDA.
The APDA offers various Parkinson’s disease support groups across Alaska, including virtual and in-person options.
Key groups include:
Virtual Carepartner Group: Meets monthly via Zoom.
Anchorage: In-person meetings on the 3rd Saturday of each month.
Fairbanks: Virtual meetings on the 1st Saturday.
Homer: In-person meetings on the 1st Friday of the month.
Juneau: In-person meetings on the 3rd Tuesday of the month.
For more details, visit APDA Alaska Support Groups.
For more information and Tips for Activities of Daily Living for People with Parkinson’s, see our blog post on Living Well with Parkinson’s Disease.
5. National Multiple Sclerosis Society
The National Multiple Sclerosis Society (NMSS) provides resources to help people living with MS manage the disease and improve their quality of life. Their website offers support through local events, expert guidance, and access to educational materials. Key services include advocacy, research funding, support groups, and tools to assist with living well with MS. They also promote community engagement through fundraising events like Walk MS and Bike MS. Visit the NMSS website for more detailed information and resources: National MS Society.
For more details on what is available here in Anchorage visit the Anchorage Self-Help Group website.
6. Community Resources for Exercise and Rehabilitation
For individuals managing neurological conditions, staying active is important for maintaining mobility and independence. In Anchorage, several exercise programs focus on supporting people with neurological challenges, such as Rock Steady Boxing for Parkinson’s disease or other adaptive fitness programs designed for individuals with MS or stroke recovery.
Some local places that offer exercise programs include:
The Dome: Indoor walking/ running track and exercise equipment
B Fit & Well: Focuses on fitness for older adults and those with neurological conditions.
See our other blog post on the Best Community Exercise Programs for Seniors in Anchorage, Alaska | Stay Active & Healthy for more exercise options in the Greater Anchorage Area.
Conclusion
Navigating a new neurological diagnosis can be challenging, but Anchorage offers a wide range of resources and support systems to help individuals and families manage the transition. From medical care and rehabilitation to support groups and fitness programs, there are many options available to ensure that individuals with neurological conditions can live their best lives. If you or a loved one is facing a new neurological diagnosis, don’t hesitate to reach out to these local resources for help, education, and support.
